The Cute Syndrome Foundation

New York

Funding from ICAP Charity Day will support the Connor James Smith Patient Assistance Grant, which offers financial assistance to SCN8A patients for medical equipment, therapy devices, educational aids, and other needs that are not covered by insurance. The Foundation aims to say "yes!" and meet the needs of children with disabilities who so often hear "no".

Charity Overview

The Cute Syndrome Foundation (TCSF) raises awareness of rare SCN8A genetic mutations, works to advance SCN8A research, and supports individuals and families affected by SCN8A-related disorders. SCN8A mutations cause a range of neurological conditions, including epilepsy, developmental delay, movement disorders, autism spectrum disorder, and other physical and behavioural challenges. TCSF serves families affected by SCN8A in 56 countries around the world, empowering them with education, resources, and community.