The Guillain Barre Syndrome Association of NSW

Sydney

A donation from ICAP will support a pioneering research project to better understand inflammatory neuropathies, including disease mechanisms. ICAP funding will cover clinical assessments, nerve studies and blood tests. The Guillain Barre Syndrome Association of NSW will conduct clinical trials on patients who suffer with a rare and serious condition of the peripheral nervous system, to help determine and guide associated treatments.

Charity Overview

The Guillain Barre Syndrome Association of NSW is a small support group with approximately 70 members including eight volunteer Committee Members who are dedicated to providing support to people impacted by Guillain-Barre syndrome (GBS), Chronic inflammatory demyelinating polyneuropathy (CIDP) and related disorders through:

• Providing information and support to improve the quality of life for people affected with GBS/CIDP or related disorders via its website, newsletters, email, helpline, counselling and hospital visits.

• Providing financial support to people affected with GBS/CIDP or related disorders.

• Pioneering new research to find a cure and promoting awareness of the condition.

• Fostering development of new treatments and models of care within the medical community.

• Creating local area networks to support sufferers in regional and remote areas.