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FAST Foundation for Angelman Syndrome Therapeutics

Sydney

Angelman Syndrome (AS) is very rare and often goes undiagnosed or is misdiagnosed. ICAP will fund the production of two short videos designed to provide information and awareness of the symptoms of the syndrome to inform the general public and support all those touched by the disorder.

Charity Overview

Angelman Syndrome (AS) is a severe neurological disorder characterised by profound developmental delays, problems with motor co-ordination and balance, and a seizure disorder that can be difficult to treat. Individuals with AS do not develop functional speech. Those affected by AS tend to have a happy demeanour, characterised by frequent laughing, smiling and excitability. People living with AS require life-long care, intensive therapies to help develop functional skills and improve their quality of life, and close medical supervision often involving multiple medical interventions.